Am I Going to Die? - NEW
Sheila Hollins and Irene Tuffrey-Wijne. Illustrated by Lisa Kopper
John has a terminal illness. This book tells
his story, dealing with both physical deterioration and the
emotional aspects of dying in an honest and moving way. John is
shown getting weaker and needing more help. He looks back at his
life and makes choices about how to spend his time. The pictures
highlight the importance of going on special outings, of
remembering good times, and of saying proper goodbyes to family and
friends. The final images show John dying at home.
Guidelines are provided (as text at the back)
for carers and supporters, health and other professionals who
provide support to people with learning disabilities who are
terminally ill. Lists of other helpful written resources and
relevant organisations are also given.
Although this story is fictional, it is based
on the real life experiences of ten people with learning
disabilities who had a terminal illness. They participated in the
Veronica Project, a research project conducted by St George’s
Hospital, London and funded by Cancer Research UK. The book draws
on what was important for the participants when they were ill and
dying and demonstrates best practice as identified by them.
"The Books Beyond Words series has a more user-friendly
approach to explaining important issues in the lives of people with
learning disabilities. ...This publication is a useful learning
tool for nurses and people with learning disabilities."
Learning Disability Practice