"Reliable, routine outcome measurement and data collection
is a complex task that is only just beginning to be undertaken by
many services. Ultimately, improving outcomes for children and
young people is what matters most." National CAMHS Review
2008
ROM Members:
QNIC also offers
alternative ways to return data. If you are a ROM
member please enter your login
details and access PDF copies of all tools. Hard copies of
questionnaires may be posted, faxed or
scanned and
emailed back
to us.
All tools are freely available to
download and print on this page.
If your unit would like further
practical support in implementing QNIC ROM please visit our
'implementation support' page where you can access details of units
who have set up a successful system. Presentations by Professor
Simon Gowers and Farah Khalid are also provided alongside an up to
date newsletter.
QNIC ROM
QNIC offers a routine outcome
measurement service in collaboration with the CAMHS Outcome
Research Consortium (CORC) at no extra cost to members. The
development of Routine Outcome Monitoring is set as a target within
the Children’s NSF implementation report (2006) and QNIC can offer
a system that members will inform to ensure appropriate use and
interpretation of outcome data at a unit level as well as across
the membership. Further details are provided below.
Pilot Phase:
Five general adolescent units and one specialist eating disorder
participated in the pilot which began in September 2007 and
ran through to the end of December 2007. The purpose of the pilot
was to assess: (a) how well the data collection system worked
for unit staff, (b) the feed-back process, analysis and potential
interpretation of the data and (c) the overall usefulness of
the QNIC ROM service in terms of clinical practice, service
evaluation and development.
National roll out
Training days will now be held at
regular intervals to enrol more units onto the service. If you are
interested in becoming a member please contact Carly
Butler or telephone 020 7977 6685.
QNIC ROM
consultation
A majority of
members expressed an interest in the QNIC ROM service and
responses were from all types of units (e.g. general adolescent
units; specialist eating disorder etc). The QNIC ROM service to
date has been informed by this consultation, a review of the
literature, and the QNIC ROM Research and Advisory Group which CORC
are a part of.
Outcome tools and other variables
Multiple perspectives will be
sought from the clinician, young person, parent/carer,
teacher at repeated time points - admission and discharge. For
those units who think it is possible, we recommend completing
certain measures in between these two time points (every 6 weeks
for HoNOSCA and CGAS) to gain a clearer picture of change through
time.
- Health of the Nation Scales for the Children and
Adolescents-HoNOSCA (Gowers et al.,1999);
- Children’s Global Assessment Scale-CGAS (Schaffer et al.,
1983);
- Strengths and Difficulties Questionnaire- (Goodman,
1998);
- Eating Disorders Examination Questionnaire (Fairburn et
al.,1994);
- Diagnostic specific tools (e.g. Beck Hopelessness Scale) – we
encourage the use of these specific scales and will endeavour to
support this data collection on request.
- Tools specific to specialist units will be selected based on
the literature and further consultation with experts in each of the
specialist groups.
Variables to account for the
heterogeneity within and between units will include:
- Demographic variables comparable to CORC
- Baseline variables: severity of symptoms, purpose of admission:
emergency, assessment, or treatment.
- Diagnosis at discharge
- Length of stay
- Measure of satisfaction (CAMHSSS young person & parent
version)
Qualitative accounts of young
people and parent’s experiences of each service will be sought
through the QNIC review process.
Data collection system
We are using an on-line data
collection called SNAP. Each unit will be provided with their own
security code and all the data variables and outcome tools are
available on the 'Measures Used' web page.
On completion the QNIC ROM
questionnaires can be printed off and placed in the young person’s
file before being submitted electronically to QNIC. This data can
be exported into Excel and SPSS and the raw data can be fed-back to
units on a regular basis. No personal identifying data will be
collected and the rules of anonymity and confidentiality will
apply.
Analysis and reports
Regular individual reports are compiled
by QNIC ROM which will provide graphical representation of the
information provided. The mean scores of an individual unit will be
compared against the mean scores of all QNIC ROM members.
We plan to consult with the
membership on all aspects of the service and invite your feedback
on the data variables and tools.
The service should be
informed by your needs and be useful to your service at a clinical
and service development level. You will be consulted about the
usefulness of data collected and the unit level reports we plan to
produce.
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