Eligibility
CAPSS can be used to survey a wide range
of rare but important disorders and events in the CAMHS field.
The condition of interest is a rare childhood
disorder or event (or a rare complication of a more common
condition) of such low incidence or prevalence as to require
ascertainment of cases on a national scale in order to generate
sufficient numbers for study. The CAPSS Executive Committee may
also consider inclusion of short-term or geographically limited
studies of comparatively more common conditions.
Consideration of suitability takes into
account:
* the public health and
scientific importance of the study
* the feasibility and
acceptability of the methodology to be employed
Studies will not usually be considered if they
are:
* Expecting more than 300
new cases a year - Clinical trials - Case control studies;
* Developing a registry -
Requires long-term follow up - Requires retrospective reporting
Application process
The CAPSS has a two phase application
procedure:
- Phase 1 is a short
initial application submitted in order for the CAPSS Executive to
understand the condition you wish to undertake. Applications may be
rejected at this stage particularly if they do not fit the
eligibility criteria.
- Phase 2 is a more
detailed application requiring the submission of the research
questionnaire, details on costings and administrative support
available. Studies may be rejected at this stage, primarily due to
the likely difficulties in answering research objectives or
problems with a case definition.
Phase 1 application
Please read the applications guidelines before
completion. The application forms must be
submitted 1 month before the date of a CAPSS
Executive.
- You may be required to attend the Executive
to present your application.
- Applications may be rejected at this stage
particularly if they do not fit the eligibility criteria.
- If approved a more detailed Phase 2
application will be sought, see Phase 2 Applications/Guidelines
(below).
- Approval of the Phase 1 does not mean that
the Phase 2 application will be automatically accepted.
Phase 2 application
PALS - Patient Advice and Liaison Service:
providing information, advice and support to help patients,
families and their carers.
Please read the applications guidelines before
completion. The application forms must be
submitted 1 month before the date of a
CAPSS Executive.
Advice about involving the public in your
study:
- You may be required to attend the Executive
to present your application.
- If the study is approved you will need MREC
and NIGB-ECC approval. Visit the IRAS site for the
appropriate paperwork.
Future dates of CAPSS Executive Meetings
- 10 May 2012 (deadline for applications: 19
April 2012)
- 13 September 2012 (deadline for applications:
16 August 2012)
- 13 December 2012 (deadline for applications:
15 November)