CAPSS actively encourages the involvement of
Applicants are encouraged to approach relevant
support or public involvement groups to inform them of the proposed
study and, where possible, involve them in it. Researchers may wish
to produce a public information leaflet including information about
the condition and the study which can be distributed to relevant
groups / organisations (where appropriate).
You may find the following resources useful when considering public
Contact a Family - advice, information and support to the parents
of all disabled children
INVOLVE - promoting and supporting active public involvement in
NHS, public health and social care research.
PALS - Patient Advice and Liaison Service: providing information,
advice and support to help patients, families and their
Young Minds – Young Minds is the UK's only
national charity committed to improving the mental health and
emotional well-being of all children and young people.
Please note that although the CAPSS is keen to
involve the public, it acknowledges that the level of involvement
may vary depending upon the nature of the study.