|
 This is a work
in progress. Here are a selection of books, articles and websites,
given as personal selections by people involved with the relevant
areas.
Submissions welcome - please email.
Website comments by Tom Picton.
|
- Learning about
Intellectual Disabilities and Health - A developing
website, funded by several organisations, presenting commissioned
information about various aspects of Learning Disabilities, for all
people. Graphics make it a little slow to load, and also seems to
be updated slowly. Bulletin board mentioned was in fact just a web
feedback form. Hopefully the site will become active again in the
near future, but has very useful range of articles already and is
particularly useful for medical students.
General introductory texts
Online Learning Disabilities
Textbook - M Roy, D Clarke, A Roy (Ed).
An introduction to Learning Disability Psychiatry (2000) A very
good online book, especially for trainees just starting a learning
disabilities post, could be downloaded to a laptop or handheld PC.
Simple layout but a wealth of basic information. Last updated in
2000, states it is still being transferred but all chapters seem to
be there.
Psychiatric and Behavioural Disorders in Developmental
Disabilities and Mental Retardation. Bouras N. (editor)
(1999) Cambridge, Cambridge University Press. Multiauthor
general text
The Clinicians guide to psychotropic prescribing in Children and
Adolescents – a useful summary of prescribing consensus in 2003.
Available from the website (look
under publications/reference).
Seminars in the Psychiatry of Learning Disabilities (2nd
edition). Fraser W. and Kerr M. (2003) London, Gaskell Press.
Good general text for MRCPsych
Measuring behaviour in developmental disability: a review of
existing schedules. Developmental Medicine & Child
Neurology - O'Brien G. Pearson J. Berney T. Barnard
L. Supplement. 87:1-72, 2001 Jul.
An annotated review of some of the main assessment schedules.
Psychiatry in Learning Disability. Reed S.G. (editor)
(1997) London, W.D. Saunders Company Ltd. – good general textbook
suitable for MRCPsych
History of Learning
Disability
Selected by Dr Sheena Rolf, Open University Autumn 2004
The Problem of Mental Deficiency Eugenics, Democracy, and Social
Policy in Britain, c. 1870-1959 by Mathew Thomson (1998) Clarendon
Press.
From Idiocy to Mental Deficiency Historical perspectives on
people with learning difficulties edited by David Wright and Anne
Digby (1996) Routledge
Outside the Walls of the Asylum The History of Care in the
Community 1750-2000 edited by Peter Bartlett and David Wright
(1999) Athlone Press
Forgotten Lives Exploring the History of Learning Disability
edited by Dorothy Atkinson, Mark Jackson and Jan Walmsley (1997)
BILD
Crossing Boundaries Change and Continuity in the History of
Learning Disability edited by Lindsay Brigham, Dorothy Atkinson,
Mark Jackson, Sheena Rolph and Jan Walmsley (2000) BILD
An Auto/Biographical Approach to Learning Disability Research by
Dorothy Atkinson (1997) Ashgate
Inventing the Feeble Mind A History of Mental Retardation in the
United States by James Trent (1994) University of California
Press
The Borderland of Imbecility Medicine: Society and the
Fabrication of the Feeble Mind in Late Victorian and Edwardian
England by Mark Jackson (2000) Manchester University Press
Sociological study of intellectual disability: moving beyond
labelling and social constructionist perspectives by Jani Klotz in
British Journal of Learning Disability , 32, 2, June 2004
'Dynamics of Discourse: A Case Study Illuminating Power
Relations in Mental Retardation' by Dimity Peter in Mental
Retardation Vol. 38, no.4, August 2000
Mental Retardation Vol. 38, No.4 August 2000 contains a useful
debate about using Foucault when looking at issues of learning
disability in history and the social sciences
'Enforced migrations by people with learning difficulties: a
case study' in Oral History 27, 1.
Women with Intellectual Disabilities Finding a Place in the
World edited by Rannveigh Traustadottir and Kelley Johnson, Jessica
Kingsley, 2000.
Good Times, Bad Times: Women with Learning Difficulties Telling
their Stories edited by Dorothy Atkinson, Jan Walmsley, Mable
Cooper Sheena Rolph et al BILD, 2000
See this
website for series of videoclips and life stories.
Government documents
Selected by Dr Geraldine Holt
Most of these are available on the internet.
Department of Health Learning Disabilities
This site aims to provide up to date information from the
Government for professionals in the field, in which it succeeds,
and is working on being accessible to learning disabled people
themselves, which it acknowledges it is not as yet. Content is
comprehensive, navigation easy and there are an impressive number
of links and essential downloadable pdf documents. The pages load
quickly in a no-frills way, there is an e-mail address for contact
and overall the site is a must.
Health Needs Assessment Report: People with Learning Disabilities
in Scotland. Feb 2004. NHS Health Scotland. A large literature
review of the epidemiology and health needs of people with learning
disabilities with service recommendations.
Action for Health - Health Action Plans and Health
Facilitation
Department of Health (2002)
Consent - what you have a right to expect (A guide for relatives
and carers)
Department of Health (2001)
Developing services for carers and families of people with
mental illness
Department of Health (2002)
Effective Care Co-ordination in Mental Health Services
NHS Execut& Social Services Inspectorate (1999)
Family Matters: Counting Families In
Department of Health (2001)
Good practice in consent implementation guide: consent to
examination or treatment
Department of Health (2001)
Foundation for People with Learning Disabilities - Green Light
for Mental Health: how good are your mental health services for
people with Learning Disabilities. 2004.
Health of the Nation: Mental health, towards a better
understanding
Department of Health (1995)
Health of the Nation: Strategy for people with learning
disabilities
Department of Health (1996)
Learning Difficulties and Ethnicity
Department of Health (2001)
Learning Difficulties and Ethnicity: A Framework for
Action
Department of Health (2004)
Local Planning for Advocacy: A Toolkit For Learning Disability
Partnership Boards
Valuing People Support Team (2004)
Making Decisions: Helping People Who Have Difficulty Deciding
For Themselves
Lord Chancellor's Department (2002)
Making It Happen: A guide to delivering mental health
promotion
Department of Health (2001)
Mental Capacity Bill
Department of Constitutional Affairs, The Stationery Office
(2004)
Mental Health and Social Exclusion: Social Exclusion Unit
Report
Social Exclusion Unit (2004)
Mental Health: National Service Framework
Department of Health (1999)
No Secrets: Guidance on developing and implementing multi-agency
policies and procedures to protect vulnerable adults from
abuse
Department of Health (2000)
Nothing About Us Without Us
Department of Health (2001)
Older People: National Service Framework
Department of Health (2001)
Personality Disorder: No longer a diagnosis of exclusion
National Institute for Mental Health in England (2003)
Reforming the Mental Health Act:
Part 1: The New Legal Framework
Part 2: High Risk Patients
Department of Health (2000)
Safety First: Five-year report of the National Confidential
Inquiry into Suicide and homicide by people with mental
illness
Department of Health (2001)
Self Harm: The short term physical and psychological management
and secondary prevention of self harm in primary and secondary
care
National Institute for Clinical Excellence (2004)
Sign Posts for Success: In commissioning and providing health
services for people with learning disabilities. NHS Executive
(1998)
Still Building Bridges: The Report of a National Inspection of
Arrangements for the Integration of Care Programme Approach with
care Management
NHS Execut& Social Services Inspectorate (1999)
Towards Person Centred Approaches: Planning with People.
Department of Health (2002)
Valuing People: A New Strategy for Learning Disability for the
21st Century
Department of Health (2001)
Women's Mental Health: Into the Mainstream
Department of Health (2002)
International service documents
G. Holt et al. (2000) BIOMED-MEROPE project: service provision
for adults with intellectual disability: a European comparison.
JIDR, 44,6, 685-696
European manifesto on Basic Standards of Health Care for People
with Learning Disabilities 2003
Services
N. Bouras, G.Holt (2004) Mental Health Services for adults with
learning disabilities. B. J. Psychiatry 184:291- 2. argues for a
tertiary service.
P. K. Carpenter (2002) Should there be a Faculty of Learning
Disability Psychiatry?
Psychiatric Bulletin. 26:82-3. argues for neurodevelopmental
psychiatry as a specialty.
Cole A. (2002) Include Us Too: Developing and improving services
to meet the mental health needs of people with learning
disabilities. London, IAHSP
S. Hollins (2002) What is the future of the psychiatry of
learning disability? Psychiatric Bulletin 26:283-4. Suggests a need
for psychotherapy as a specialism as part of Learning
Disability.
Diagnosis/Epidemiology
American Association on Mental Retardation (2002) Mental
Retardation: Definition, Classification, and systems of support
(10th Edition).
A influential definition, now in its latest revision
DC-LD (Diagnostic criteria for psychiatric disorders for use
with adults with learning disabilities/mental retardation) (2001)
Royal College of Psychiatrists Ocasional Paper 48. Gaskell Press.
diagnostic criteria suggested for people with moderate or severe
learning disabilities.
Consent
American Psychiatric Association (1998) Guidelines for assessing
the decision making capacities of potential research subjects with
cognitive impairment. American Journal of Psychiatry, 155: 1649 –
50.
Set of principles that are applicable to people with LD as well as
others.
BMA & Law Society (2004) Assessment of Mental Capacity:
Guidance for Doctors and Lawyers. 2nd edition BMJ Books
A very useful reference book for use in a wide range of
situations.
Primary care
Royal College of General Practitioners. (1990) Occasional Paper
47: Primary Care for People with a Mental Handicap. London: RCGP. -
not yet reissued
National Forum for people trying to
improve access to acute hospital care
Contains several suggested protocols and ideas for help
See also health indicators under International Service
Challenging
Behaviour
Information and advice on challenging
behaviour - a group that is still developing
Syndromes
Contact a Family
Contact a Family is a UK charity which helps families who care
for children with any disability or special need. They are a main
source of information about rare disorders and are able to assist
affected adults as well as children. The site is easily searchable,
and information on a wide range of conditions is easily accessible
to parents, carers and professionals, with the option of ordering
further items. Content seems up to date and navigation is smooth,
and the pages fast loading yet still colourful. E-mail and local
contact addresses are available and the site has understandably won
a number of awards. Only penalty is limited free access per
month.
Mendelian
Inheritance in Man
Vast catalogue of genetic conditions with up-to-date medical
reviews on each. Kept well up to date. Searchable and easy to
navigate. Useful list of allied resources. E-mail contact
available. Parts of the site said to be available for FTP download,
but this wasn't functional. Not the most beautiful of sites but
does its job extremely well.
Down Syndrome Association (UK)
This site states it aims to make as much of their information
accessible to as many people as possible around the world. There
are over 200 pages of information regularly updated. Professionals,
carers and people with Down Syndrome and their families are all
catered for. The site is attractive but perhaps a little
over-elaborate in terms of graphic effects, multiple navigation
options and "ticker- tape" text which slow page loading a little.
There are many useful contact addresses and links. An essential
site for those of us concerned with the rights of people with Down
Syndrome.
Elderly
Suggested by Dr Sabyasachi Bhaumik Autumn 2004
Papers/books of historical value
Psychiatry of elderly people with mental handicap; International
journal of Geriatric psychiatry; 1992; 7; 865-874.
Psychiatric disorders in the middle aged and elderly mentally
handicapped; Day KA; British Journal of Psychiatry;
1985,147,660-667.
The elderly mentally handicapped in hospital, a clinical study;
journal of mental deficiency research; Day KA, 1987; 31;
131-146.
Hogg J, Mos& Cooke D (1988), Aging and Mental Handicap;
Croom Helm: Manchester.
Aged Subnormal; In Psychiatric disorders in late life; Kaplan
OJ; 1956; Oxford; University press; Oxford.
Epidemiology of aging in developmental disabilities. In aging
and developmental disabilities, issues and approaches (ed. MP
Janicki and HM Wisniewski) 1985 PP 95-113; PH Brooks,
Baltimore.
Dementia in aging mentally defectives: a clinical psychiatric
study; Reid AH and Angle PG; Journal of mental deficiency research;
1974; 18; 15-23.
Mortality and dementia among ageing mentally defectives; Tait D
Journal of mental deficiency research; 1983; 27; 133-142
More recent publications
Patel P, Goldberg DP, Moss SC (1993); Psychiatric morbidity in
older people with moderate or severe learning disability, Part II,
prevalence study; British Journal of Psychiatry; 163; 481-491.
Collacott RA (1992)Effects of age and residential placement on
adaptive behaviours of adults with Down syndrome,B. J. Psychiatry;
161.675-679.
Effects of age and residential placement on adaptive behaviours
of adults with Down syndrome, Collacott RA; 1992; 161.675-679.
Psychiatric symptoms associated with dementia in Older people
with Learning Disability; Moss, S; Patel P; British Journal of
Psychiatry; 1995; 167(5); 663- 667.
Aging and Mental retardation; Janicki MP, Dalton AJ; Current
Opinion in Psychiatry; 1995; 8(5); 301-307; 1995.
High prevalence of dementia among people with Learning
Disabilities not attributable to Down's syndrome; Cooper SA;
Psychological medicine; 1997; 27(3); 609-616.
Aging in people with Learning Disability -focus on Alzheimer's
disease; Cooper SA; Current Opinion in Psychiatry; 1998; 11(5);
535-539.
Aging and Mental Retardation; Walsh PN; Current Opinion in
Psychiatry; 2002; 15(5); 509-514.
Aging and Learning Disability; Holland AJ; British Journal of
Psychiatry; 2000; 176; 26-31.
Ageing and intellectual disabilities: Improving longevity and
promoting healthy aging, (2000). Include five reports: Physical
Health issues, Biobehavioral issues, Women's Health, Ageing and
Social Policy, and a Summative Report. Published in Journal of
Applied Research in Intellectual Disabilities, 2001. (Ageing and
Intellectual Disabilities Special Interest Research Group (SIRG) of
The International Association for the Scientific Study of
Intellectual Disability (IASSID)" Healthy Aging -Adults with
Intellectual Disabilities," Behavioural issues," Thorpe I,
Davidson, Janicki M; a REPORT OF THE AGING SPECIAL INTEREST GROUP
OF THE INTERNATIONAL (REPORT FOR WHO).)
International association for the scientific study of
intellectual disabilities (IASSID) papers, (2001). Blackwell
Publishing. (Journal of Applied Research in Intellectual
Disabilities, Vol. 14, No.3. London: Blackwell Science. This
special issue contains the research reports developed by the IASSID
Special Interest Group on Aging in collaboration with the World
Health Organization to promote the healthy aging of adults with
intellectual disabilities worldwide. The papers address age-related
physical health changes, bio-behavioural and women's health issues,
policy and practice recommendations and include a summative report.
The issue has an introduction by Matthew Janicki plus papers on
friendships and residential supports. )
Down syndrome and Alzheimer's ,disease; a link between
development and ageing; Lott IT and Head E; Ment Retard Dev Disabil
Res Rev 2001 ; 7; 172- 178.
A prospective study of menopause in women with Down syndrome;
Seltzer GB; SchupfN; Wu H-S. Journal of Intellectual Disability
Research; 2001;'45; 1-7
Towards a rational strategy for promoting healthy ageing among
people with intellectual disabilities; Janicki MP; J Appl Res
Intellect Disabil2001; 14; 171-174.
Mental health, intellectual disabilities and the aging process,
(2003). Davidson, P.W., Prasher, V.& Janicki, M, P, Blackwell
Publishing.
Sensory
deficits
Recommendations by Dr Helen Miller Autumn 2004
Mental Health and Deafness, ed Peter Hindley and Nick Kitson,
Whurr Publishers , London and Philadelphia, 2000 (ISBN: 1
897635397)
Working Psychologically with Deaf People Across the Lifespan eds
Sally Austin and Susan Crocker, Whurr Publishers 2004 (ISBN
186156404)
Autism
National Autistic Society
Largest UK charity working for people with autistic spectrum
disorders. Useful list of publications, information and
comprehensive set of links to autism sites. Content for
professionals as well as those with such disorders and their
families. Site is searchable, looks good and is easy to navigate
through. Independently accredited as being accessible.
Allergy Induced
Autism
This site provides dietary recommendations to avoid
the exacerbation of autism, and improving patients’ physcial
comfort. Links to some medical articles. The site is very patient
orientated, and is focused on the dietary recommendations and the
user forum. Interesting information for anyone caring for someone
with autism.
Autistic Society
An
excellent and easily navigable site based in the United States
providing lots of information about most aspects of autism and
Asperger's syndrome. There are links to current medical research,
news updates, and medications. There are also forums for carers,
lists of alternative treatments, and advice on various legal
issues.
Holt, G., Bouras, N. (2002)
Autism and Related Disorders. The basic handbook for mental health,
primary care and other professionals. World Psychiatric
Association / Royal College of Psychiatrists.
A short useful multi-author summary on Autistic Spectrum Disorders
and behavioural and environmental management, which is quick to
read. Some minor inconsistencies and has little on common
perceptual and processing difficulties, but still a useful book for
any SHO.
National Society for
Epilepsy
This is a site with sections for members of the public as well as
professionals, the latter have to be registered for, fortunately
very easily, opening up much academic information. Content
available is vast, and the site is pleasing on the eye with very
clear sections and a search facility. One slight annoyance however
is the tendency for new windows to open on clicking certain links
within the site. The popular message board is a welcome feature,
there are plenty of means available to contact the Society as well
as relevant offsite links. British Epilepsy Association,
name has been changed to Epilepsy Action, provides information to
epileptics of all ages and those working with them. Interesting
features include chat facility and online shop. Smart and easy to
navigate, site search available. Up to date news. Many contact
points.
Working Group of IASSID (2001) Clinical guidelines for the
management of epilepsy in adults with an intellectual disability.
Seizure. 10: 401-9.
Comprehensive review of the literature with coherent and practical
guidance..
Devinsky, O., Westbrook, L. E. (eds) (2001) Epilepsy &
Developmental Disabilities. London: Butterworth-Heinemann
A 400 page multi-author book comprehensively covering aspects of
Epilepsy and Developmental disabilities in children and adults.
Mental Health - General
NADD - The National Association for
the Dually Diagnosed
North America based group that promotes the needs of people with a
learning disability who have additional mental health problems.
Have a useful catalogue of educational resources and training
materials in the area of mental illness in people with Learning
Disability. I found the site structure and navigation a little
confusing at times, which was added to by the "members only" aspect
to many of the features, which of course comes at a price.
Deb, S., Matthews, T., Holt G., Bouras N. (2001) Practice
Guidelines for the Assessment and Diagnosis of Mental Health
Problems in Adults with Intellectual Disability. Brighton:
Pavilion. (available on this website) Useful introduction for
SHO’s, and to provoke self review.
Bouras N, Holt G, Day K & Dosen A (2000): Mental Health in
Mental Retardation: The ABC for mental health, primary care and
other professionals. 2nd edition. World Psychiatric Association –
downloadable here. A basic
introduction that is useful.
Anxiety
disorders
Selection by Dr Sherva Cooray
Khreim& Mikkelson, E 1997 Anxiety Disorders in adults with
mental retardation. Psychiatric Annals, 27, 271-81:
Masi, Gabriele, Brovedani, Paola, Mucci, Maria, Favilla,
Letizia,
Assessment of anxiety and depression in adolescents with mental
retardation. Child Psychia& Human Development. Vol 32(3) Spr
2002, 227-237.
Masi G. . 2000 F.L Mucci M Generalised Anxiety Disorder in
adolescents and young adults with mild mental retardation.
Psychiatry. Vol 63(1) pp54-64, McNally, Richard J. Anxiety and
phobias. [Chapter] Matson, Johnny L. (Ed); Mulick, James A. (Ed).
(1991). Handbook of mental retardation (2nd Ed.). Pergamon general
psychology series, Vol. 121. (pp. 413-423). xv, 672pp.
Ryan, R. (1995); Post Traumatic Stress Disorder in Persons with
Developmental Disabilities: community Mental Health Journal 30 91)
45-54
Sternlicht, M. (1979) Fears of institutionalised mentally
retarded adults. Journal of Psychology 101 67-71.
: Study compares the fears in people with MR against a control
group.
Treatment of Psychiatric and Behavioral Problems in Mental
Retardation. Expert Guideline Series American Journal on Mental
Retardation Volume 105, No3 May 2000
Suggested Reading List for Learning Disabilities 19.01.05
Depression
Suggested by Dr Elita Smiley
Review articles
Cooper, S-A., Collacott, R.A. (1996) Depressive episodes in
adults with learning disabilities, Irish Journal of Psychological
Medicine, 13, 105-113.
A very comprehensive review covering all the literature on the
epidemiology, diagnostic criteria, rating scales and treatment of
depressive episodes published prior to 1994.
Smiley, E, Cooper, S-A (2003) Intellectual disabilities,
depressive episode and diagnostic criteria and Diagnostic Criteria
for Psychiatric Disorders for Use with Adults Learning
Disabilities/Mental Retardation [DC-LD]. Journal of Intellectual
Disability Research, 47, 62-71
A more recent review that focuses on symptoms and diagnostic
criteria. Has a useful table of references and also case studies
illustrating the use of DC-LD in the diagnosis of depression.
McBrien, J.A. (2003) Assessment and diagnosis of depression in
people with intellectual disability. Journal of Intellectual
Disability Research, 47, 1-13.
A review article which describes the progress made in the
assessment and diagnosis of depression since the 1990's.
Epidemiology
Richards, M., Maughan, B., Hardy, R. et al (2001) Long-term
affective disorder in people with mild intellectual disability.
British Journal of Psychiatry, 179, 523-527.
Collishaw, S., Maughan, B., Pickles, A. (2004) Affective
problems in adults with mild learning disability: the roles of
social disadvantage and ill-health. British Journal of Psychiatry,
185, 350-351
Two interesting papers reporting a strong association between
mild learning disability and depressive symptoms in adult life.
Rating scales
Cuthill, F., Espie, C., Cooper, S-A Development and psychometric
properties of the Glasgow Depression Scale for people with a
Learning Disability (2003). British Journal of Psychiatry, 182,
347-353.
A recently developed rating scale.
Treatment
The literature on the treatment of depression in adults with
learning disability is extremely limited.
Bhaumik, S., Branford, D., Naik, B.I., Biswas, A.B. (2000) A
retrospective audit of selective serotonin inhibitors (fluoxetine
and paroxetine) for the treatment of depressive episodes in adults
with learning disabilities. The British Journal of Developmental
Disabilities, 46, 131-139.
Cutajar, P., Wilson, D. (1999) The use of ECT in intellectual
disability. Journal of Intellectual Disability Research, 43,
421-427.
A survey that examines the use of ECT with people with learning
disability.
Addictions in Learning Disablity
Reviewed by Dr Helen Miller Summer 2004
Review articles:
Burgard JF, Donohue B, Azrin NH, Teichner G
Prevalence and treatment of substance abuse in the mentally
retarded population: an empirical review.
Journal of Psychoactive Drugs. 32 (3): 293-, 2000 Jul-sept.
Clarke JJ, Wilson DN
Alcohol problems and intellectual disability
Journal of Intellectual Disability Research. 43 (pt2): 135-9, 1999
Apr.
Christian L, Poling A
Drug abuse in persons with mental retardation: a review
American Jouranl of Mental Retardation. 102(2): 126-36, 1997 Sept
Epidemology
(actually is really just a survey) McGillicuddy NB, Blane HT
Substance use in individuals with mental retardation.
Addictive Behaviours. 24(6): 869-78, 1999 Nov-Dec.
Liver transplantation in mental retardation and alchoholic
cirrhosis
Van Vlierberghe H, Colle I, Troisi R de Hemptinne B, De Vos M
Liver transplantaion and mental retardation
Acta Gastroenterologica Belgica. 65(2): 131-2, 2002 Apr-Jun
Associations with offending/forensic
Holland T, Clare IC, Mukhopadhyay T
Prevalence of criminal offending be men and women with intellectual
disability and the characteristics of offenders: implications for
research and service development.
Journal of Inetlectual Disability Research. 46 Suppl 1:6-20, 2002
May.
Soderstrom H, Sjodin AK, Carlstedt A, Forsman A
Adult psychopathic personality with childhood-onset hyperactivity
and conduct disorder: a central problem constellation in forensic
psychiatry.
Psychiatry Research. 121(3):271-80, 2004 Jan1.
Sweet RI, Saules KK
Validity of the substance abuse subtle screening
inventory-adolescent version (SASSI-A).
Journal of Substance Abuse Treatment. 24(4): 331-40, 2003 Jun.
Associated with epilepsy
Opeskin K, Berkovic SF
Risk factors for sudden unexpected death in epilepsy: acontrolled
prospective study based on coroners cases.
Seizure. 12(7): 456-64, 2003 Oct.
Associated with Cleft Palates
Christensen K, Mortensen PB
Facial clefting and psychiatric diseases: a follow up of the Danish
1936-1987 Facial Cleft Cohort.
Cleft Palate-Craniofacial Journal. 39(4): 392-6, 2002 Jul.
Elevated rates of substance abuse in first-degree
relatives of TSC probands with autism compared to first degree
relatives of TSC proband without autism
Gutierrez GC, Smalley SL, Tanguay PE
Autism in tuberose sclerosis complex
Journal of Autism and Developmental Disorders. 28("): 97-103, 1998
Apr.
Sexual aspects and abuse
Ann Craft Trust
This association is dedicated to the protection from abuse of
adults and children with learning disabilities. The website
provides information mainly to workers in the field on becoming a
member, relevant publications, research and training. Content
seemed to have been updated six months previously although some of
the site was still under construction. Navigation through the main
pages of the site was simple, pages loaded quickly, useful links
are available and an e-mail address. This site does its specific
job effectively.
Sequeira, Howlin, and Hollins. (2003) Psychological disturbance
associated with sexual abuse in people with learning disabilities:
Case-control study. Br J Psychiatry 183(5): 451-456.
Psychotherapy in Learning
Disabilities
suggestions by Dr Roger Banks,
Banks, R. (2003) Psychological Treatments, in
'Psychiatry', Chapter: Learning Disability II, 2:9 : 62-65 The
Medicine Publishing Company
Beail, N. (1998) Psychoanalytical psychotherapy
with men with intellectual disabilities: a preliminary outcome
study. British Journal of Medical Psychology, 71, 1-11.
Bicknell, J. (1983) The psychopathology of
handicap. British Journal of Medical Psychology, 56, 167-78.
Bunt,& Hoskyns, S. (2002) eds. The handbook
of music therapy. New York: Brunner-Routledge
Butz, M.R., Bowling, J& Bliss, C.A. (2000)
Psychotherapy with the mentally retarded: A review of the
literature and its implications. Professional Psychology: Research
and Practice, 31, 42-7.
Chesner, A. (1995) Dramatherapy for People with
Learning Disabilities, A World of Difference. London: Jessica
Kingsley.
De Groef,& Heinemann, E. (1999) eds.
Psychoanalysis and Mental Handicap. London: Free Association
Books
Frankish, P. (1989) Meeting the emotional needs
of handicapped people: a psychodynamic approach. Journal of Mental
Deficiency Research, 33, 407-14.
Hollins,& Sinason, V. (2001) Psychotherapy,
learning disabilities and trauma: new perspectives. British Journal
of Psychiatry, 176, 32-6.
Jacques, R. (2003) Family Issues. in
'Psychiatry', Chapter: Learning Disability II Psychiatry, 2:9:
39-42. The Medicine Publishing Company
Lindsay, W.R., Howells,& Pitcaithly, D.
(1993) Cognitive therapy for depression with individuals with
intellectual disabilities. British Journal of Medical Psychology,
66, 135-41.
Prout, H& Nowak-Drabik, K.M. (2003),
Psychotherapy with persons who have mental retardation: An
evaluation of effectiveness. American Journal of Mental
Retardation, 108 (2), 82-93.
The Royal College of Psychiatrists (2004)
Psychotherapy and Learning Disability. Council
Report CR116. London: Royal College of Psychiatrists.
Sinason, V. (1992) Mental Handicap and the
Human Condition: New Approaches from the Tavistock. London: Free
Association Books.
Stenfert Kroese, B. et al (1997) eds.
Cognitive-Behaviour Therapy for People with Learning Disabilities.
Lon& New York: Routledge.
Symington, N. (1981) The psychotherapy of a
subnormal patient. British Journal of Medical Psychology,
54,187-99.
Other
therapies
Einfield, S. L., (2001) Systematic management approach to
pharmacotherapy for people with learning disabilities. Advances in
Psychiatric Treatment. 7: 43-49.
Foundation for People
with Learning Disabilities
Research organisation working with people with Learning
Disabilities to improve their quality of life. Site has variety of
information and research findings, mainly on services and support
systems. Very professionally laid out for fast loading and
navigation. Kept right up to date and searchable with working
guestbook, gallery, bulletin boards and forums encouraging
contributions from all. Take note, certain other sites!
British Institute Of Learning
Disabilities
BILD offers a range of services to support
learning by professionals, care staff, service users and their
families. This site has recently moved and had been difficult to
access but is up and running smoothly now. There is undoubtedly a
lot of useful information and specialised journals available from
BILD, but little is given away for free on the site, and one would
really have to pay to become a member and subscribe for each
service.
Norah Fry Research
Centre
Research centre producing research on services and lives of people
with Learning Disabilities. Has a variety of publications including
online documents and a Strategies For Change section giving advice
on the implementation of "Valuing People". Simple to navigate
through, regular updates, numerous points of contact, but again
much information including the Plain Facts magazine will cost.
Tizard Centre
Centre based at University of Kent, providing research and courses
on people with Learning Disabilities. Homepage takes a while to
load. Searchable. Good links section. Colour scheme not to
everyone's taste, I expect, but fairly easy to navigate. Not much
in the way of free content, Learning and Teaching section requires
membership of the University of Kent , several other materials have
to be paid for, but enough there for interested parties.
Links to international
organisations
AAMR - American Association on Mental
Retardation
Produces useful policy statements, publications, journals and
newsletter. Also has useful series of links to North American
sites. Homepage slow to load. The reading room provides some useful
downloadable documents and elsewhere abstracts of the Association's
journals can be found, although much content is for members only.
Discussion groups, chat and guestbook are a nice touch. Site is up
to date, not too garish and easy to navigate.
ASSID - The International
Association for the Scientific Study of Intellectual DisabilitiesI
nternational group for the promotion of research and information.
Website at present mainly information on organisation structure,
but contains information on conferences and some documents it
produces, several are downloadable. Not a great deal of free
content but more than adequately serves its main purpose.
MAMH - European Association of
Intellectual Disability Medicine
European group to promote all aspects of the study of the medical
(including psychiatric) needs of people with Learning Disabilities.
Includes a description of services in various countries and long
list of links. This group seem to be doing an interesting and
important service, and the site is most attractive, perhaps paying
a small price for this though in loading times. Up to date and
quite a pleasure to navigate through.
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