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Research reading list
CAMDEX-DS
Published by Cambridge University Press
The CAMDEX-DS has been developed by the Learning Disabilities
Research Group at the University of Cambridge as part of a
programme of research on Down’s syndrome and dementia. It is
designed to facilitate the diagnosis of dementia in people with
Down’s syndrome or in others with pre-existing intellectual
disabilities for reasons other than that of Down’s syndrome. It is
a modification of the Cambridge Assessment for Mental Disorders in
The Elderly and comprises of four sections.
- First, a structured informant interview that asks about
function in those domains that are known to deteriorate with the
development of dementia (memory, general mental functional, skills,
personality etc) and where problems are noted specifically asks
whether such dysfunction is long-standing or of more recent onset.
This allows a reliable judgement to be made about the presence or
not of functional decline sufficient to meet criteria for
dementia.
- Secondly, it includes the CAMCOG-DS, a neuropsychological
assessment, to enable a profile of neuropsychological function to
be established that can be monitored over time and can inform both
diagnosis and support.
- Thirdly, the CAMDEX-DS includes a summary of the various
criteria for the diagnosis of dementia and other mental disorders
and guidance on investigations.
- Finally, it includes summary advice about strategies that might
be used to support people with dementia.
Diagnoses made using the CAMDEX-DS have been
found to be both valid and reliable (Ball, S.L., Holland, A.J.,
Huppert, F.A., Treppner, P., Watson, P., Hon, J. (2004) The
modified CAMDEX informant interview is a valid and reliable tool
for use in the diagnosis of dementia in adults with Down’s
syndrome. JIDR, 48(6):611-620). For further
information please go to the website.
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