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The Royal College of Psychiatrists Improving the lives of people with mental illness

CR155. Dementia and People with Learning Disabilities

Price: £10.00

Approved: Sep 2009

Published: Nov 2009

Status: current

Number of pages: 84

Review by: 2013

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Guidance on the assessment, diagnosis, treatment and support of people with learning disabilities who develop dementia. Co-published by The British Psychological Society and the Royal College of Psychiatrists.

The main purpose of the report is to enable those working in clinical and social care services to improve the quality of life of people with learning disabilities who develop dementia, by providing guidance to inform assessment, diagnosis, treatment and support. The guidance is aimed at clinicians in learning disability and older peoples’ mental health services and services for younger people with dementia.

The main focus is on the key factors that are the elements of an excellent service, and to help those working in services evaluate how they might help the increasing numbers of people with learning disabilities who are developing dementia given improvements in life-expectancy.



Members of the working group



Purpose of this report


1: Context

2: Epidemiology

3: Baseline and monitoring

4: Possible reasons for apparent decline in functioning

5: Clinical presentation of dementia

6: Assessment

7: Decision making/telling people

8: Additional health/clinical issues associated with dementia

9: Conceptual understanding of the dementia process

10: Philosophy of care

11: Environments

12: Meeting changing needs/interventions

13: Medications

14: End of life issues

15: Capable commissioning for people with learning disabilities and dementia

16: Capable workforce

17: References


Appendix: Good Practice Standards – self assessment checklist


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