QNIC Routine Outcome Measurements Service
"Reliable, routine outcome measurement
and data collection is a complex task that is only just beginning
to be undertaken by many services. Ultimately, improving outcomes
for children and young people is what matters most." National
CAMHS Review 2008
ROM Members:
QNIC also offers alternative ways
to return data. If you are a ROM member please enter your login
details and access PDF copies of all tools. Hard copies of
questionnaires may be posted, faxed or
scanned and emailed
back to us.
Measures
Used
All tools are freely available to download and print on this
page.
Implementation Support
If your unit would like further practical support in implementing
QNIC ROM please visit our 'implementation support' page where you
can access details of units who have set up a successful system.
Presentations by Professor Simon Gowers and Farah Khalid are also
provided alongside an up to date newsletter.
QNIC ROM
QNIC offers a routine outcome
measurement service in collaboration with the CAMHS Outcome
Research Consortium (CORC) at no extra cost to members. The
development of Routine Outcome Monitoring is set as a target within
the Children’s NSF implementation report (2006) and QNIC can offer
a system that members will inform to ensure appropriate use and
interpretation of outcome data at a unit level as well as across
the membership. Further details are provided below.
Pilot Phase: Five general adolescent units and one specialist
eating disorder participated in the pilot which began in
September 2007 and ran through to the end of December 2007. The
purpose of the pilot was to assess: (a) how well the data
collection system worked for unit staff, (b) the feed-back process,
analysis and potential interpretation of the data and (c)
the overall usefulness of the QNIC ROM service in terms of
clinical practice, service evaluation and development.
National roll out
Training days will now be held at
regular intervals to enrol more units onto the service. If you are
interested in becoming a member please contact Carly
Butler or telephone 020 7977 6685.
QNIC ROM consultation
A majority of
members expressed an interest in the QNIC ROM service and
responses were from all types of units (e.g. general adolescent
units; specialist eating disorder etc). The QNIC ROM service to
date has been informed by this consultation, a review of the
literature, and the QNIC ROM Research and Advisory Group which CORC
are a part of.
Outcome tools and other variables
Multiple perspectives will be
sought from the clinician, young person, parent/carer,
teacher at repeated time points - admission and discharge. For
those units who think it is possible, we recommend completing
certain measures in between these two time points (every 6 weeks
for HoNOSCA and CGAS) to gain a clearer picture of change through
time.
- Health of the Nation Scales for the Children and
Adolescents-HoNOSCA (Gowers et al.,1999);
- Children’s Global Assessment Scale-CGAS (Schaffer et al.,
1983);
- Strengths and Difficulties Questionnaire- (Goodman,
1998);
- Eating Disorders Examination Questionnaire (Fairburn et
al.,1994);
- Diagnostic specific tools (e.g. Beck Hopelessness Scale) – we
encourage the use of these specific scales and will endeavour to
support this data collection on request.
- Tools specific to specialist units will be selected based on
the literature and further consultation with experts in each of the
specialist groups.
Variables to account for the
heterogeneity within and between units will include:
- Demographic variables comparable to CORC
- Baseline variables: severity of symptoms, purpose of admission:
emergency, assessment, or treatment.
- Diagnosis at discharge
- Length of stay
- Measure of satisfaction (CAMHSSS young person & parent
version)
Qualitative accounts of young people
and parent’s experiences of each service will be sought through the
QNIC review process.
Data collection system
We are using an on-line data
collection called SNAP. Each unit will be provided with their own
security code and all the data variables and outcome tools are
available on the 'Measures Used' web page.
On completion the QNIC ROM
questionnaires can be printed off and placed in the young person’s
file before being submitted electronically to QNIC. This data can
be exported into Excel and SPSS and the raw data can be fed-back to
units on a regular basis. No personal identifying data will be
collected and the rules of anonymity and confidentiality will
apply.
Analysis and reports
Regular individual reports are compiled
by QNIC ROM which will provide graphical representation of the
information provided. The mean scores of an individual unit will be
compared against the mean scores of all QNIC ROM members.
We plan to consult with the membership on all aspects of the
service and invite your feedback on the data variables and
tools.
The service should be informed by your needs and be useful to your
service at a clinical and service development level. You will
be consulted about the usefulness of data collected and the unit
level reports we plan to produce.
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