Cost-effectiveness of models of care for young people with
eating disorders (CostED)
- The CostED study is a UK- and Republic of
Ireland- wide study which commenced in February 2015. It is the
largest CAPSS study to date.
- The study will identify incident cases
of anorexia nervosa in young people aged between 8 and 17 years and
11 months and classify the models of care provided.
- Follow-up data will be used to
evaluate whether increased investment in community-based specialist
eating disorder services would benefit young people and provide
good value for money to the NHS.
- Funded by: National Institute for Health Research (11/1023/17)
and Health and Social Care Research
and Development Division, Public Health Agency (Northern
by: King’s College London REC [PNM/13/14-105] and the Health
Research Authority Confidentiality Advisory Group [CAG
4-03(PR1)/2014] under Section 251.
Sarah Byford, Professor of Health Economics, Centre for the
Economics of Mental and Physical Health, King’s College London, De
Crespigny Park, London SE5 8AF; firstname.lastname@example.org
Further information on the study,
including the case definition and reporting instructions, are
CAPSS - Children and adolescents with ADHD in
transition between children’s services and adult services
Surveillance of Children and adolescents with ADHD in transition
between children’s services and adult services (CATCh-uS) is due to
commence in November 2015. This project focuses on what happens to
young people with Attention Deficit Hyperactivity Disorder (ADHD)
when they are too old to stay with children’s services. Little is
known about how many areas have specialist services for adults with
ADHD and how many young people need to move to them when they are
too old for children’s services.
Lead investigator Professor Tamsin
Ford, University of Exeter Medical School,South
Cloisters,St Luke’s Campus,Exeter EX1 2LU;
This project focuses on what happens to young people with
Attention Deficit Hyperactivity Disorder (ADHD) when they are too
old to stay with children’s services. We know little about how many
areas have specialist services for adults with ADHD and how many
young people need to move to them when they are too old for
children’s services. Until the late 20th century, ADHD was a
controversial diagnosis. Once generally accepted, it is seen as a
developmental disorder of children, and so mental health services
for adults are not set up to manage young adults who have ADHD and
continue to want support to cope with their lives.
There are National Institute for Health and Care Excellence
(NICE) guidelines about the management for ADHD in adulthood, and
this often involves taking medication that General Practitioners
feel inexperienced to prescribe without support from specialists,
as happens with children. Existing work suggests that young people
with developmental disorders like ADHD are particularly likely not
to transfer to adult mental health services, there has yet to be an
in depth study of this issue in the UK. This will be the first
national study to examine how many young people are in need of
services for ADHD as adults. We will also explore how current
service users and service providers experience this transition.
This project consists of 3 streams: 1) a 6 month surveillance
study of young people with ADHD; 2) a qualitative study to explore
the views and experiences of service users; 3) a mapping
study that will combine information about the location of services
from the surveillance and interviews with email/postal surveys of
service commissioners, providers and key service user groups.
Case definition: Please report any young
person with ADHD taking medication for ADHD seen by you for the
first time in the 6 months preceding the young person reaching your
service’s age boundary. Please report any case even if you believe
the case may have been reported from elsewhere.
This includes any:
- Young person with a clinical diagnosis of ADHD under the care
of CAMHS, who is reviewed for the first time when
within six 6 months of reaching the services’ age boundary,
whatever this may be. Young people should only be reported
once and those that have already been seen and
reported in this time-scale should not be reported
a second time.
- Young person who is considered to require continued drug
treatment for their symptoms of ADHD after crossing the service age
- young person who has not previouslybeen reported to the BPSU in
relation to the current study.
- Young person with ADHD and comorbid diagnoses, including learning / developmental disabilities, should
be reported only if it is their ADHD for which
on-going drug treatment in adult services is required.
- Young people with a past / current history of ADHD but who do
not require medication for their ADHD.
- Young people with past / current ADHD who are not currently
taking medication for their ADHD
- Young people with past / current ADHD who require transition to
adult mental health services in relation to comorbid difficulties
but not require or take current drug treatment for their ADHD.
- Young people who have been reported previously to the BPSU in
relation to the current study.
- Young people who transition from paediatric services to CAMHS
under the age of 18.
November 2015 to April 2016 (6 months of surveillance with a
possible extension to 13 months depending on case numbers),
Follow-up until January 2017 (9 month follow-up).
National Institute for Health Research
This study has been approved by NRES Committee – Yorkshire &
Humber – South Yorkshire Research Ethics Committee (REC reference:
15/YH/0426) and has been granted Section 251 HRA-CAG permission
(CAG Reference: 15/CAG/0184).
UK ADHD Network (UKAAN) and
Adult Attention Deficit Disorder UK
Further information on the study, including the case definition
and reporting instructions, are available from: