CAPSS actively encourages the involvement of
Applicants are encouraged to approach relevant
support or public involvement groups to inform them of the proposed
study and, where possible, involve them in it. Researchers may wish
to produce a public information leaflet including information about
the condition and the study which can be distributed to relevant
groups / organisations (where appropriate).
You may find the following resources useful when considering public
Contact a Family - advice,
information and support to the parents of all disabled
INVOLVE - promoting and
supporting active public involvement in NHS, public health and
social care research.
PALS - Patient Advice and Liaison Service: providing information,
advice and support to help patients, families and their
Young Minds – Young Minds
is the UK's only national charity committed to improving the mental
health and emotional well-being of all children and young
Please note that although the CAPSS is keen to
involve the public, it acknowledges that the level of involvement
may vary depending upon the nature of the study.