CAPSS publications
Here you can find CAPSS anniversary reports, published research and other materials of interest.
Publications presenting findings from CAPSS surveillance studies are listed under 'Related publications'.
Please find below a link to the CAPSS 15-year report, published to coincide with our special anniversary symposium, held in 2025.
In 2020 CAPSS (the Child and Adolescent Psychiatry Surveillance System) published its 10-year report.
In 2016, CAPSS (the Child and Adolescent Psychiatry Surveillance System) published its 7-year report.
Sanchez-Cerezo, J, Neale, J, Julius, N, Lynn, R M, Hudson, L, & Nicholls, D (2024). Incidence of avoidant/restrictive food intake disorder in children and adolescents across the UK and Ireland: a BPSU and CAPSS surveillance study. BMJ open, 14 (11), e088129. doi.org/10.1136/bmjopen-2024-088129
Haidar E, Sanchez-Cerezo J, Neale J, et al (2024) Comparison of clinical presentation and management of children and adolescents with ARFID between paediatrics and child and adolescent psychiatry: a prospective surveillance study Archives of Disease in Childhood Published Online First: 17 October 2024 doi: 10.1136/archdischild-2024-327032
Sanchez-Cerezo J, Neale J, Julius N, Croudace T, Lynn RM, Hudson LD, Nicholls D (2024) Subtypes of avoidant/restrictive food intake disorder in children and adolescents: a latent class analysis. eClinicalMedicine 2024;68: 102440
Holland J, Roe J, Guo B, Dasilva-Ellimah M, Burn A, Dubicka B, Ford T, Wagner A, Nazir S, James A, Morriss R, Sayal K (2023) ‘Far Away from Home’: adolescent inpatient admissions far from home, out of area or to adult wards: a national surveillance study BMJ Ment Health 2023;26:e300843
Wooding, E. L., Morton, M. J. S., Lim, M., Mitrofan, O., Mushet, N., Sie, A., Knight, B., Ford, T., & Newlove-Delgado, T. (2023). Childhood/adolescent Sydenham's chorea in the UK and Ireland: a BPSU/CAPSS surveillance study. Archives of disease in childhood, 108(9), 736–741. https://doi.org/10.1136/archdischild-2023-325399
Khadr S, Masic U, Clarke V, Lynn RM, Holt V, Carmichael P. (2022) Key socio-demographic characteristics of children and adolescents with gender dysphoria: A British Isles surveillance study. Clinical Child Psychology and Psychiatry 2022, Vol. 0(0) 1–17. DOI: 10.1177/13591045221108840
Byford S, Petkova H, Barrett B, Ford T, Nicholls D, Simic M, Gowers S, Macdonald G, Stuart R, Livingstone N, Kelly G, Kelly J, Joshi K, Smith H, Eisler I. (2021) Cost-effectiveness of specialist eating disorders services for children and adolescents with anorexia nervosa: a national surveillance study. J Eat Disord. 2021 Jun 26;9(1):76. https://doi.org/10.1186/s40337-021-00433-5
Eke H, Ford T, Newlove-Delgado T, et al. (2020) Transition between child and adult services for young people with attention-deficit hyperactivity disorder (ADHD): findings from a British national surveillance study. The British Journal of Psychiatry. 2020;217(5):616-622. doi:10.1192/bjp.2019.131
Petkova H, Simic M, Nicholls D, Ford T, Stuart R, Livingstone N, Kelly G, Eisler I, Gowers S, Macdonald G, Barrett B, Byford S. (2019) Incidence of anorexia nervosa in young people in the United Kingdom and Republic of Ireland. BMJ Open, 2019, 9, e027339. doi:10.1136/bmjopen-2018-027339.
Byford S, Petkova H, Stuart R, Nicholls D, Simic M, Ford T, Macdonald G, Gowers S, Roberts S, Barrett B, Kelly J, Kelly G, Livingstone N, Joshi K, Smith H & Eisler I. (2019). Alternative community-based models of care for young people with anorexia nervosa: the CostED national surveillance study. Health Services and Delivery Research Volume: 7, Issue: 37, October 2019 DOI 10.3310/hsdr07370
Mitrofan O, Petkova H, Janssens A, Kelly J, Edwards E, Nicholls D, McNicholas F, Simic M, Eisler I, Ford T, Byford S. Care experiences of young people with eating disorders and their parents: qualitative study. BJPsych Open. 2019 Jan;5(1):e6. https://doi.org/10.1192/bjo.2018.78
Katzman, D. K., Madden, S., Nicholls, D., Mawjee, K., & Norris, M. L. (2017). From questions to answers: Examining the role of pediatric surveillance units in eating disorder research. The International journal of eating disorders, 50(3), 259–265. https://doi.org/10.1002/eat.22663
Pinhas L, Nicholls D, Crosby R, Morris A, Lynn R, Madden S. (2017) Classification of Childhood Onset Eating Disorders: A latent class analysis. IJED. https://doi.org/10.1002/eat.22666
Sharma, A., Neely, J., Camilleri, N., James, A., Grunze, H., & Le Couteur, A. (2016). Incidence, characteristics and course of narrow phenotype paediatric bipolar I disorder in the British Isles. Acta psychiatrica Scandinavica, 134(6), 522–532. https://doi.org/10.1111/acps.12657
Paul A. Tiffin, Charlotte E. W. Kitchen. (2015). Incidence and 12-month outcome of childhood non-affective psychoses: British national surveillance study. British Journal of Psychiatry 206, 517-8.
Ani C, Reading R, Lynn R, Forlee S, Garralda E. (2013). Incidence and 12-month outcome of non-transient childhood conversion disorder in the UK and Ireland. British Journal of Psychiatry202, 413-8
Hudson LD, Nicholls DE, Lynn RM, Viner RM. (2012). Medical instability and growth of children and adolescents with early onset eating disorders. Archives of disease in childhood; 97, 779-784
Lynn RM, Viner RM, Nicholls DE (2012). Ascertainment of early onset eating disorders; A pilot for developing a National Psychiatric Surveillance System. Child and Adolescent Mental Health17, 109-112
Nicholls D, Lynn R, Viner R (2011). Childhood eating disorders: British national surveillance study. British Journal of Psychiatry 198. 295-301.
Sharma AN, Neely J, Le Couteur AS, Grunze H, Nicholls D, James A, Graham P, Lynn R, Scott J, Ferrier IN. (2009). Study of pediatric bipolar disorder in UK and ROI: development of a case definition and pilot data from North East England. Bipolar Disorders 11(Suppl 1) 79.
Sharma A, Le Couteur AS, Nicholls D, Graham P, Lynn R, Ferrier IN. (2008). Paediatric bipolar disorder: A way forward.