Resources

(PDF)Information for participating organisations:

• Culture of Care Information pack (PDF) - February 2024

Question and Answer sessions:

• Question and Answer session recording - 27 February 2024

• Question and Answer session recording - 12 March 2024
  

• Question and Answer session slide deck (PDF)

Foundations of the programme:

• Quality Transformation Programme - NHS England

• Culture of care standards for mental health inpatient services- NHS England

• Research and resources - Health & Social Care, Neurodiverse connection
• Resources on sensory environments - Buildings & Design, Neurodiverse connection  
• Improving the Sensory Environments of Mental Health In-Patient Facilities for Autistic Children and Young People - Williams, Corbyn and Hart (2023)
• Autistic SPACE: A Novel Framework for Meeting the Needs of Autistic People in Healthcare Settings - Doherty, McCowan and Shaw (2023)
• Meeting the Needs of Autistic Adults in Mental Health Services - NHS England (2023)
• Why is Healthcare so Inaccessible to Autistic People - Roches Rosa (2022)
• Autism Adapted Safety Plan - Mental Health in Autism, University of Nottingham
• Design in Mental Health podcast - The Culture of Care: Incorporating Autism-Informed and Trauma-Informed Care (2025)
• Culture of Care Positive Behaviour Support (PBS) Position Statement (PDF)
• Guide to PBS and ABA for professionals, parents and caregivers (PDF), Neurodiverse connection

• Patient and Carer Race Equality Framework (PCREF) - South London and Maudsley NHS Foundation Trust
• Patient and Carer Race Equality Framework (PCREF) - Easy read version (PDF)
• Patient and Carer Race Equality Framework (PCREF) - One-page infographic (PDF)

• Working Well Together - Royal College of Psychiatrists

• Co-production: an introduction - NHS England

• Co-production: what it is and how to do it - Social Care Institute for Excellence (SCIE) 

• Coproduction in Mental Health Toolkit - National Development Team For Inclusion (NDTi)

• Resources and training - Learning for Involvement - National Institute for Head and Care Research (NIHR) 

• What is co-production  (PDF)- East London Foundation Trust

• Resources and Support - UK Standards for Public Involvement 

• A map of resources for co-producing research in health and social care - Applied Resources West, NIHR 

• Lived Experience Leadership Digital Library - National Mental Health Consumer & Carer Forum

• Resources - Fuse, the Centre for Translational Research in Public Health 

• Co-production Research Toolkit (PDF)- Leeds Social Sciences Institute, University of Leeds  

• A Guide To Co-production -  (PDF)Tameside and Glassop Integrated Care NHS Foundation Trust

• Nordin A, Kjellstrom S, Robert G, Masterson D, Areskoug Josefsson K. Measurement and outcomes of co-production in health and social care: a systematic review of empirical studies. BMJ Open. 2023;13:e073808. 

• Marsilio M, Fusco F, Gheduzzi E, Guglielmetti C. Co-Production Performance Evaluation in Healthcare. A Systematic Review of Methods, Tools and Metrics. International Journal of Environmental Research and Public Health. 2021;18:3336. 

• Faulkner, A., & Thompson, R. (2023). Uncovering the emotional labour of involvement and co-production in mental health research. Disability & Society, 38(4), 537–560.

• Lambert, N. and Carr, S. (2018), ‘Outside the Original Remit’: Co-production in UK mental health research, lessons from the field. Int J Mental Health Nurs, 27: 1273-1281

• AIDS Bereavement and Resiliency Program of Ontario (although this relates to people living with HIV it has some helpful well-being tools for people with lived experience involved in co-production e.g., bracketing, grounding and holistic check-ins)

• 4Pi Involvement Standards - National Survivor User Network

• Understanding Boundaries - Neurodiverse Connection

Co-production in mental health:

• Co-production in mental health - not just another guide (PDF)  - Skills for Care

• Sheffield Flourish - a charity that works collaboratively on innovative digital and community projects, recognising the untapped strengths of people who’ve experienced mental health challenges.

Tools to co-produce

• Co-production Project Planner - Iriss
• Co-design tools - Pilotlight, Iriss
• Reflective questions to support co-produced research - Applied Resources West, NIHR
• Influence and participation toolkit - Mind

Reports

• Lived Experience Leadership - National Survivor User Network

Co-production guidance document

• A guidance document (PDF) for wards to support meaningful coproduction and develop lived experience roles - NCCMH, NDC, BTG and Trauma-informed Care Collaborative

Watch a British Sign Language video aims at people with lived experience of inpatient mental health care.

The video provides information on what the Culture of Care Programme is and how to get involved.

Watch the video.

• NCCMH National Sexual Safety Standards  (PDF)

• Restrictive interventions and seclusion: time for another look -Journal of Psychiatric Intensive Care (PDF), 15 (1): 1–3 doi:10.20299/jpi.2019.006 - NAPICU 2019 

• Design Guidance for Psychiatric Intensive Care Units (PDF), 2017 - National Association of Psychiatric Intensive Care Units (napicu) & Design in Mental Health Network 

• Support for improving community-based care for self-harm - The University of Manchester
• Manchester Self-Harm Project - Data on emergency department presentations for self-harm in Manchester
• Mutual Support for Mental Health-Research (MS4MH-R) - Patient, carer partners and public involvement in research

Report

• The assessment of clinical risk in mental health services - National Confidential Inquiry into Suicide and Safety in Mental Health
• Autism community priorities for suicide prevention - International Society of Autism Research

Guidelines

• Self-harm: assessment, management and preventing recurrence - National Confidential Inquiry into Suicide and Safety in Mental Health
• The new NICE self-harm guidelines, aftercare and intervention - National Confidential Inquiry into Suicide and Safety in Mental Health

Publications

• Carter G, Milner A, McGill K, Pirkis J, Kapur N, Spittal MJ. Predicting suicidal behaviours using clinical instruments: systematic review and meta-analysis of positive predictive values for risk scales. The British Journal of Psychiatry. 2017 Jun;210(6):387-95.
• Chan MK, Bhatti H, Meader N, Stockton S, Evans J, O'Connor RC, Kapur N, Kendall T. Predicting suicide following self-harm: systematic review of risk factors and risk scales. The British Journal of Psychiatry. 2016 Oct;209(4):277-83.
• Graney J, Hunt IM, Quinlivan L, Rodway C, Turnbull P, Gianatsi M, Appleby L, Kapur N. Suicide risk assessment in UK mental health services: a national mixed-methods study. The Lancet Psychiatry. 2020 Dec 1;7(12):1046-53.
• Large MM, Ryan CJ, Carter G, Kapur N. Can we usefully stratify patients according to suicide risk?. Bmj. 2017 Oct 17;359.
• Morriss R, Kapur N, Byng R. Assessing risk of suicide or self-harm in adults. BMJ. 2013 Jul 25;347.
• Quinlivan L, Cooper J, Meehan D, Longson D, Potokar J, Hulme T, Marsden J, Brand F, Lange K, Riseborough E, Page L. Predictive accuracy of risk scales following self-harm: multicentre, prospective cohort study. The British Journal of Psychiatry. 2017 Jun;210(6):429-36.
• Quinlivan L, Cooper J, Steeg S, Davies L, Hawton K, Gunnell D, Kapur N. Scales for predicting risk following self-harm: an observational study in 32 hospitals in England. BMJ open. 2014 Apr 1;4(5):e004732.
• Quinlivan L, Gorman L, Littlewood DL, Monaghan E, Barlow SJ, Campbell S, Webb RT, Kapur N. ‘Wasn’t offered one, too poorly to ask for one’–Reasons why some patients do not receive a psychosocial assessment following self-harm: Qualitative patient and carer survey. Australian & New Zealand Journal of Psychiatry. 2022 Apr;56(4):398-407
• Quinlivan L, Gorman L, Marks S, Monaghan E, Asmal S, Webb RT, Kapur N. Liaison psychiatry practitioners’ views on accessing aftercare and psychological therapies for patients who present to hospital following self-harm: multi-site interview study. BJPsych open. 2023 Mar;9(2):e34.
• Quinlivan L, Gorman L, Monaghan E, Asmal S, Webb RT, Kapur N. Accessing psychological therapies following self-harm: qualitative survey of patient experiences and views on improving practice. BJPsych open. 2023 May;9(3):e62.
• Quinlivan L, Steeg S, Elvidge J, Nowland R, Davies L, Hawton K, Gunnell D, Kapur N. Risk assessment scales to predict risk of hospital treated repeat self-harm: A cost-effectiveness modelling analysis. Journal of affective disorders. 2019 Apr 15;249:208-15.
• Quinlivan LM, Gorman L, Littlewood DL, Monaghan E, Barlow SJ, Campbell SM, Webb RT, Kapur N. ‘Relieved to be seen’—patient and carer experiences of psychosocial assessment in the emergency department following self-harm: qualitative analysis of 102 free-text survey responses. BMJ open. 2021 May 1;11(5):e044434.
• Steeg S, Quinlivan L, Nowland R, Carroll R, Casey D, Clements C, Cooper J, Davies L, Knipe D, Ness J, O’connor RC. Accuracy of risk scales for predicting repeat self-harm and suicide: a multicentre, population-level cohort study using routine clinical data. BMC psychiatry. 2018 Dec;18:1-1

Deconstructing the diagnosis of personality disorder: PAR Learning Event, 8 April 2025

Lived experience-led resources:

• Asylum Magazine (Volume 14 No 3) Autumn 2004
• Deconstructing BPD
• Watts, Jay. The epistemic justice of borderline personality disorder. BJPsych International 21, no. 4 (2024) 78-82.
• Watts, Jay. Complex trauma and the unseen: who gets to be a victim? BMJ Mental Health (2024 Jan); 27 (1)
• Aves, W. Dispelling myths and challenging neglect in 'borderline personality disorder' healthcare: a lived experience perspective. Journal of Psychosocial Studies (2023 Aug); 16(2): 179 - 92.
• Wildbore E, Bond C, Timmons S, Hui A, Sinclair S. Service Users' Perspectives on Communicating Compassion in Mental Health Practice. Nursing Open (2024 Nov); 11(11): e70081
• Wildbore EL. What is the long-term impact of being part of a Therapeutic Community for staff and service-users, 4 years after the closure of the service? Therapeutic Communities: The International Journal of Therapeutic Communities (2025 May)

Bruch Tamilson paper:

• Tamilson B, Eccles JA, Shaw SC. The experiences of autistic adults who were previously diagnosed with borderline or emotionally unstable personality disorder: a phenomenological study. Autism (2025 Feb); 29(2): 504-1

Data, Research and Reports:

• Safer care for patients with personality disorder - The University of Manchester
• Annual Report 2023: UK patient and general population data 2010 - 2020 - The University of Manchester
• Clinical characteristics and care pathways of patients with PD who died by suicide - The University of Manchester
• Flynn S, Graney J, Nyathi T, Raphael J, Abraham S, Singh-Dernevik S, Williams A, Kapur N, Appleby L, Shaw J. Clinical characteristics and care pathways of patients with personality disorder who died by suicide. BJPsych Open (2020 Mar); 6(2): e29
• Flynn S, Raphael J, Graney J, Nyathi T, Williams A, Kapur N, Appleby L, Shaw J. The personality disorder patient pathway: Service user and clinical perspectives. Personality and Mental Health (2019 Aug); 13(3): 134-43
• Safer care for patients given a diagnosis of personality disorder: a learning resource - The University of Manchester